Main Goals

• Guide lines for the families, continuation of the final draft 
• Genetic Research: Co-ordination with The University of Nijmegen (Holland) and the Parma Hospital 
• Collaboration with the Italian Ministry of Health for the drafting of a new project of assistance for the families with Rare Deseases 
• Review / updating of the Medical Structures for diagnosis, treatment and research for Moebius Syndrome.